What Was That?

31. March 2016 Uncategorized 24

It was a normal Friday night, in early March, and our family was going thru their normal nightly routine.  It was dinner time and I was on Grayson duty, making sure his high chair tray stayed fully stocked of bite sized pieces of food (he loves food and shovels whatever we put in front of him in his mouth all at the same time).  I was cutting up more food for his tray and I saw something move out of the corner of my eye. I didn’t think anything of it.  I chalked it up to being exhausted from the work week and figured I was seeing things.  Then it happened again.  “What was that,” I thought.  Whatever I was seeing was coming from the direction of Grayson; so I just sat there and stared at him waiting for “it,” to happen again. And it did.  I couldn’t believe what I just saw.  His eyes bounced, horizontally, back and forth.  Had I blinked I would’ve missed it.  I sat there, determined to see it again, and I did.  It freaked me out.  What the heck was wrong with Grayson, now?

Mike had just taken him to the doctor for another ear infection (his 4th one in four months) earlier that day. I told Mike about what I had seen and he sat there looking at Grayson, but didn’t see his eyes move like I had. Mike was with Grayson the entire day on Saturday, while I was at a birthday party with our older kids, and he didn’t see Grayson’s eyes bounce back and forth until around dinner time.  Whatever was going on, we knew we’d be making another trip to his doctor’s office to get it checked out.

We saw his pediatrician, explained what we had been seeing (which had increased in frequency) and showed her a video that we had taken of his eyes.  To rule out anything visually wrong with his eyes, she referred us to an ophthalmologist; so off we went to see the ophthalmologist.

The ophthalmologist went thru the standard eye examination.  He confirmed that there was nothing, that he could see, behind Grayson’s eyes causing pressure which would make his eyes bounce back and forth.  We showed him the video of Grayson’s eyes bouncing, and he saw for himself while examining Grayson. He ruled out Nystagmus.  Whew, we dodged a bullet.  We were relieved that it was nothing serious.  At the very least Grayson was a bit far sighted.  We asked about Grayson’s recurring ear infections and if that would cause his eyes to do weird things.  The doctor said that it could, and he suggested that we move forward with getting tubes in his ears (as recommended by his pediatrician).

Mike and I didn’t feel comfortable putting Grayson under sedation, for the ear tubes, until we knew what was going on with eyes.  We were fearful that by putting him under sedation it could harm him if we didn’t know what was going on in his brain.  Next stop a chiropractor.

I knew chiropractors could help with ear infections; so since we were waiting on tubes, why not try a more natural approach to ward off the ear infections.  I was able to get Grayson an appointment for a Tuesday, which was 11 days after I had first noticed his eyes bouncing back and forth.  By this time, his eye movements had increased in frequency and were more intense.  All you had to do was look at Grayson for a few minutes and you’d see his eyes bounce back and forth.  I told the chiropractor what we had been seeing, and told him we were hoping a couple of adjustments would help with both the ear infections and the eye movements.  Before leaving the chiropractor’s office, I made another appointment for Grayson to have another adjustment after we got back from our Spring Break family getaway.

24 thoughts on “What Was That?”

  • 1
    Racheal Lawrence on March 31, 2016 Reply

    Sending Prayers to your family. If you need anything please ask

    • 2
      Sara on April 1, 2016 Reply

      Thank you Racheal!

  • 3
    Steph Sauter on March 31, 2016 Reply

    Gladiator Steph reporting for duty!! Thinking of you all, lots of prays and positive thinking being sent your way! If there is anything I can do for any of you please don’t hesitate to ask!! xoxox

    • 4
      Sara on April 1, 2016 Reply

      Thank you! Thankful to have you as one of Grayson’s gladiators!!

  • 5
    Austin Donnelly on March 31, 2016 Reply

    Thank you for sharing. This blog is precious for all of us who care about Grayson and his entire family.

    -Austin (Proud Gladiator for Grayson)

    • 6
      Sara on April 1, 2016 Reply

      Awe, thank you Austin. Thank you for being one of his gladiators!

  • 7
    Tiffany Beevers on March 31, 2016 Reply

    Thinking of all you & sending prayers & positive thoughts.

    • 8
      Sara on April 1, 2016 Reply

      Thank you!!

  • 9
    Ciana on March 31, 2016 Reply

    This breaks my heart. Thinking of you guys and lots of prayers for Grayson! My question is if there is a plan of attack yet for the battle?

    • 10
      Sara on April 1, 2016 Reply

      We started treatment for the OMAS. He’s had two doses of IVIg and three doses of steroids. Treatment for his Neuroblastoma hasn’t started, yet, because of additional testing needed to determine the best path to treat it. Thank you for your prayers, we really appreciate it!

  • 11
    Vicki Russell on April 1, 2016 Reply

    Thoughts and prayers heading your way for a long time❤️ I am here to help any time….be STRONG…the University of Iowa Children’s Hospital is the best place Trooper Grayson could be…

    • 12
      Sara on April 1, 2016 Reply

      We are so thankful to have a wonderful facility close by. We ❤️ UIHC and know that Grayson is in good hands. Thank you for your prayers.

  • 13
    Sam Pape on April 1, 2016 Reply

    Thank you for sharing! As a husband and father I applaud your courage and strength. Each one of you will be in my families prayers and with your blessing I would like to add Grayson to our Church’s prayer chain as well. I too am a proud Gladiator for Grayson.

    • 14
      Sara on April 1, 2016 Reply

      Thanks Sam! We appreciate your prayers and are thankful to have you as one of Grayson’s gladiators!

  • 15
    Michele on April 1, 2016 Reply

    Private Michele reporting for duty! Thank you for sharing your story. Prayers are with you always. Stay strong, pretty girl.

    • 16
      Sara on April 5, 2016 Reply

      Thanks Michele! Glad to have you with us on our journey.

  • 17
    Alexis Giunta on April 2, 2016 Reply

    Your strength through all this is amazing. You, Mike, and the kids are all in my prayers! Thank you for sharing Grayson’s journey❤️
    I’m proud to be a gladiator for Grayson!

    • 18
      Sara on April 5, 2016 Reply

      Thank you! We’re so lucky to have you as one of Grayson’s gladiators!

  • 19
    Teri on April 2, 2016 Reply

    Praying for you and your family!!

    • 20
      Sara on April 5, 2016 Reply

      Thank you Teri!

  • 21
    Trista on April 4, 2016 Reply

    Prayers to you, your family and sweet Grayson!!

    • 22
      Sara on April 5, 2016 Reply

      Thank you, Trista! We appreciate your prayers.

  • 23
    Nancy on April 4, 2016 Reply

    Thoughts and prayers to your family. Grayson is in the best possible care at the University of Iowa.

    • 24
      Sara on April 5, 2016 Reply

      Thank you, Nancy! We love the U and are so thankful that we are able to get his treatment there. They are the best!

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